Professional
Services
American Academy of Neurology. Provides its Find a Neurologist service by sub-specialty, name, or area.
http://patients.aan.com/findaneurologist
1-800-879-1960
National Adult Day Services Association. Use the website database to find adult day services in your area.
www.nadsa.org
1-877-745-1440
National Long-Term Care Ombudsman Resource Center. Click "Locate an Ombudsman" to find a professional to serve as an advocate for your family as you deal with decisions concerning long-term care for your loved one.
www.ltcombudsman.org
(202) 332-2275
Legal Assistance
ElderLawAnswers.com. Search for an attorney local to your area, or browse resources and information on financial and legal issues of aging and/or caring for an Alzheimer's patient.
www.elderlawanswers.com
1-866-267-0947
National Center on Elder Abuse. Serves as a national resource center dedicated to the prevention of elder mistreatment, addressing topics such as assisted living and financial exploitation.
https://.ncea.acl.gov/
1-855-500-3537
Financial Assistance
BenefitsCheckUp. Service of the National Council on Aging (NCOA) that helps people to understand benefits available from federal, state, and local programs.
www.benefitscheckup.org
(571) 527-3900
Safety and Home Healthcare
CarePathways. Created and maintained by nurses to provide access to healthcare information, products and services.
www.carepathways.com
1-877-521-9987
MedicAlert Foundation International. Offers emblems and chains engraved with the person’s membership number, primary medical conditions and the toll-free 24-hour Emergency Response Center number. MedicAlert allows the person to be identified, and can relay key medical facts and notify family contacts.
www.medicalert.org
1-888-633-4298
Silver Alert Program This program enables parents, guardians, relatives or other caregivers to register information surrounding persons with special needs in the Police Department’s database.www.apps.suffolkcountyny.gov/police/communityoutreachsilveralert.htm
Travel
Transportation Safety Administration (TSA) Cares. Assists travelers with medical conditions, such as Alzheimer's disease, as they prepare for travel prior to getting to the airport. Provides answers to questions about screening policies, procedures, and what to expect at the security checkpoint.
www.tsa.gov/travel/special-procedures
1-855-787-2227
Consumer Products
Alzheimer’s Store Find the best products designed for those living with Alzheimer's, dementia and for the ones caring for them!
www.alzstore.com
Nasco Browse and purchase tools for quality activity and life engagement programming at home, or anywhere.
https://www.enasco.com
““We remember their love when they can no longer remember””
Caregiving and Caregiver Support
ARCH National Respite Network. Assists families to locate respite and crisis care services in the community, and provides a consumer guide for family caregivers, The ABCs of Respite.
http://archrespite.org/respitelocator
(703) 256-2084
Caregiver Resource Center. Provides information on caregiving, planning for long-term care services and employee assistance.
www.caregiverresourcecenter.com
(203) 861-9833
Dementia Friendly America. A multi-sector, national collaborative to foster communities that are equipped to support people with dementia and their family and friend caregivers by becoming "dementia friendly."
www.dfamerica.org
Family Caregiver Alliance, National Center on Caregiving. Information, education, services, research and advocacy for those caring for people with chronic, disabling health conditions.
www.caregiver.org
1-800-445-8106
Latino Alzheimer's & Memory Disorders Alliance. Empowers Hispanic and Latino caregivers and families of those afflicted with Alzheimer's disease and memory disorders by providing education, skill building training and support programs. Also provides training programs to healthcare providers who work with the Hispanic and Latino communities.
www.latinoalzheimersalliance.org
(708) 395-5472
Mayo Clinic Alzheimer’s Caregiver Newsletter The bimonthly newsletter offers features for both patients and their families and caregivers. The newsletter provides medical insight from Mayo Clinic experts, offers information about products and services, and includes tips from other caregivers for making day-to-day activities easier for yourself and your loved ones. http://www.mayo.edu/research/centers-programs/alzheimers-disease-research-center/publications/alzheimers-newsletter
Meals on Wheels Association of America. Provides information on local meal delivery and group meal locations for seniors.
www.mealsonwheelsamerica.org
1-888-998-6325
National Caregivers Library. An extensive online library for caregivers with articles, forms, checklists and links to topic-specific external resources.
www.caregiverslibrary.org
(804) 327-1111
Pro Health. Offers search capability for finding support groups for caregivers of Alzheimer's disease.
www.prohealth.com/supportgroups
1-800-366-6056
Purple Table Reservations The Purple Table Reservation flag and restaurant training program are designed for those who are living with Dementia/Alzheimer’s Disease, Autism, PTSD, TBI, a hearing or vision impairment, or other physical or cognitive condition that may benefit from a more predictable environment and additional accommodations when dining out.
www.purpletables.com
(617) 475-0190
Prescription Assistance Programs
BrightFocus maintains lists of prescription assistance programs for patients in treatment for Alzheimer's.
www.brightfocus.org/alzheimersdrugassistance
Please call 1-800-437-2423 to order a print copy.
Long-Term Care and Living Options
A Place for Mom. Provides a searchable database of assisted living facilities with memory care services, and checklists to determine if that is the best option for your loved one.
www.aplaceformom.com/alzheimers-care
1-877-666-3239
LeadingAge. Provides a searchable database of aging services, including assisted living, nursing care, and home meal delivery.
www.leadingage.org
(202) 783-2242
National Center for Assisted Living. Represents long-term care providers; contains information for consumers on assisted living.
www.ncal.org
(202) 842-4444
Hospice Care
Caring Connections. CaringInfo provides free resources to help people make decisions about end-of-life care and services before a crisis. Topics addressed include advanced directives, and hospice and palliative care, among others.
www.caringinfo.org
1-800-658-8898
Multilingual Helpline: 1-877-658-8896
Federal Government Programs and Services
Alzheimers.gov. Provides free information about Alzheimer's disease compiled by the U.S. Department of Health & Human Services including treatment options, Medicare coverage, and referrals to local community resources.
www.alzheimers.gov
1-877-696-6775
Alzheimer's Disease Education and Referral Center (ADEAR). Provides current Alzheimer's disease information and resources from the National Institute on Aging. Offers information for people with Alzheimer's disease, their families, and professionals, including information on clinical trials.
www.nia.nih.gov/alzheimers
1-800-438-4380
Center for Medicare and Medicaid Services (CMS), U.S. Department of Health & Human Services. Provides the latest information and resources on government-sponsored health programs, including:
- Medicare, which is a federal program that provides some coverage for people who meet certain qualifications. Alzheimer's disease is not listed as a specific condition covered, but many aspects of treatment may be covered.
- Medicaid programs, which are run by individual states.
Department of Aging Provides info and resources on a range of assistance for older adults and those who care for them.
www.hhs.gov/aging/index.html
Social Security Administration (SSA), which may also provide certain benefits to qualified individuals.
Veterans Benefit Programs, those who served in the armed services may qualify for certain Veterans Administration program benefits.
To find out what services are covered by Medicare, Medicaid, Social Security, or Veterans programs, visit www.brightfocus.org/alzheimers/financial-aid or call:
CMS at 1-800-633-4227
SSA at 1-800-772-1213
Veterans Benefits at 1-800-827-1000
National Institute of Neurological Disorders and Stroke, National Institutes of Health. Provides general information on Alzheimer's disease, websites and some publications on its Alzheimer's disease page.
www.ninds.nih.gov
1-800-352-9424